Wednesday, March 23, 2011

Gimme a break...

Well we are at another "place" (if you will) in Braydon's treatment. And it looks like this...

Our last attempt at treating Braydon's seizures has been different from what we have tried over the last year. Because we had been unsuccessful at finding a medication to treat the seizures and because prayers haven't been answered YET...we decided to follow the advice of a doctor whose literature we had been reading. It was basically a no risk attempt. We simply changed our diets (which was a good thing no matter what), to a gluten-free, casein-free (dairy-free), whole foods diet. No breads, pastas, cakes, cookies, crackers, milk, yogurt, cheese etc. Pretty much only fruits, veggies and organic meats, a few beans and eggs, but that's it. Along with that he began taking all-natural plant and vegetable derived supplements. He was also seeing a chiropractor twice a week, and receiving adjustments that would hopefully help reduce seizure activity. The doctor whose literature we had been following recommended these three things: the diet changes, the supplements and the chiro. The articles stated that 60% of children with tremors, shakes, epilepsy, etc, who tried this combination, had seen a drastic reduction, if not total elimination of seizures. Pretty good odds right? Well, we gave it our best shot....stuck to it and didn't budge once.

Several hundred dollars later and a frustrating 6 weeks of drastically changing every one's lifestyle....Braydon was having slightly increased seizure activity and was unable to use the bathroom without help. It did not work!

Like everything else we've tried for over a year....IT DID NOT WORK!!! During this time our level of frustration and uncertainty and desperation to help our son peaked. We were driving to three different towns, four days a week and our situation was looking slightly worse than it did before. We were all frustrated and exhausted (especially Braydon) from spending most of our week in the car traveling from town to town or in doctors office waiting rooms. When everyone in my home is frustrated and on edge and losing their temper, I know something has to give.

Over a conversation of hard truth and warm tears, Jacoby and I decided it was time to pull the plug on all of it. We decided it was once again time to place it FULLY in God's hands, to take a step back and just say..."OK God, we aren't looking to "the next big thing" to fix him, but only looking for YOU to do what YOU need to do here. But please know that we are so tired. Tired of you doing something in our lives and with our son, tired of being the great parental example everyone pats us on the back for, tired of trying everything within our grasps and nothing working out and tired of praying about something so big and getting so little answers. WE ARE JUST TIRED! WE NEED A BREAK!" And then I wanted to scream..."Do you hear me?"...but I didn't. Sadly, the truth is that some time ago I did stop praying for healing and started praying for a break for all of us. I felt like we needed that more. We feel like for six years now, we've just been trying to keep him alive, scrambling around looking for anything that we help him and establish some normalcy for us all.

Once I let all the appts go and made some small changes back into our "normal" routine, I began to be able to listen again and stop screaming and crying at God. And it became clear to me that we have received our "break". You see, God is still going to heal Braydon of these seizures one day, and he's not freaking out like me because he already knows what day it will happen. And during this whole trial (which is drawing us closer to him to begin with-James Ch 1) I've been looking for a break that fit into my expectations while over-looking all the breaks we've been given. {It's fitting to substitute the word "break" for "blessing" here-I just happened to be using the word break while praying due to my level of anger and desperation}
Yeah my son has seizures and I need that to be over with, that's what my "break" looks like. But maybe the breaks I'm not even looking at or being thankful for is the fact that he is still alive and with me. I mean, I do have friends who have buried their children. Maybe the break I'm missing is the fact that we have the finances to go out and try just about any hair-brained idea we want to to treat the seizures. Maybe the break I'm overlooking is the fact that if we don't have the money to try something we think will help our child, we know several people who would see to it that we did have it. I have a friend on Facebook right now, facing a similar situation, that doesn't have this luxury. Maybe what I'm forgetting is that I have a child who is able to run and play and laugh with his friends, seizures and all, and is not confined to a wheelchair or unable to communicate effectively with others. You see, I have a friend whose son can best be described by the latter part of that sentence. Maybe its something so small and so far pushed back into the back of my mind, something like the fact that I was even able to get pregnant and give birth to a beautiful child to begin with!! TWICE! I have friends who have no children of their own.

I've received my break. I've gotten my blessings...more than I deserve. And He just keeps on pouring them out on me while some days I don't even notice. Ever have days like that?

Friday, March 11, 2011

On a Mission...

UPDATE: JACOBY MADE IT BACK SAFELY FROM MEXICO SATURDAY NIGHT. HE HAD A WONDERFUL TRIP (NOT COUNTING THE TICKET, FENDER BENDER, AND LOSING HIS BRAND NEW NIKON CAMERA). I CAN HONESTLY SAY HE CAME BACK DIFFERENT. WILL POST SOME PICS SOON FROM SOMEONE ELSE'S CAMERA) ;-)


Jacoby and 15 others from our church took off this morning for Mexico. This is Jacoby's first mission trip. Please pray for the whole group this week as they are working in Mexico. Update when he returns!

Thursday, March 3, 2011

Overwhelmed...

With the pace of life these days for most Americans...it's easy to get overwhelmed. I'm sometimes overwhelmed by trying to balance housework, homeschool, doctor appts, church activites, personal interests, etc. I'm sometimes overwhelmed by all the bad news I hear in the world today. I'm overwhelmed by the call to share the love of Christ with others and not knowing the right thing to say. I'm sometimes overwhelmed by the amount of work it would take to get this world in a better place and where do you even start? I know families who are overwhelmed with three kids in sports and practices or games every night of the week except Sunday. I am frequently overwhelmed by laundry....just laundry alone. Today, overwhelmed is a feeling known to all of us on some level. And the only level it feels good on is when you are overwhelmed by the love of Christ. I've done many things in my life to not deserve the love and acceptance He has given me. I'm still in awe that He could love me the way He does. And I'm beyond overwhelmed when He allows me to see the world through His eyes. If you don't have a personal relationship with Christ, I encourage you to invite Him in...the joy you will experience, will overwhelm you.

Monday, February 21, 2011

So far away...

In the last 24 hours I've received some devestating news...twice. Sunday afternoon, a friend of mine called to tell me that a guy I went to school with and have known for about 14 years was stabbed and died at 11 o'clock that morning. He was stabbed in his own front yard, one mile from where my mom lives and 2 miles from where I attend church. That night, while reading the article regarding the incidence posted on our local hometown news website, I learned the actual time it happened. It happened at 11:02 am. When I read that I instantly thought about what I was doing at 11:02 am earlier that day. I was in a room with about 50 kids and 6-7 other adults jumping up and down and singing praise and worship songs at the children's church service at our church. And I wondered..."God how could somebody that grew up in the same community as me, just 2 miles from me this morning, be experiencing something so different from me?" I was two miles from him geographically...but worlds away. Had I ever had the chance to share the love of Christ with him? Did I do it? Was I an example of Christ's love to him? I didn't like the answers. I'll just put it that way.

Today I learned that a classmate of mine and a friend of Jacoby's from high school shot himself in the chest this morning and died. And the same questions ran through my mind. There are so many hurting people in this world and when I look at it like that...the objective seems overwhelming...so I will look at it like this...there are so many hurting people in the community I live in. Will I move on to tomorrow and let this fade to the back of my mind. That certainly won't happen for the families of these two young men. And it certainly won't happen if I do what God is placing on my heart.

Please be in prayer for these families and for the entire community of Sulhpur Springs.

Sunday, February 13, 2011

Happy Valentines Day...

Happy Valentines Day from our family to you! Hope your day is filled with lots of love! Here are the pictures we used of the boys this year for the valentines we sent out to our families and a few friends! Enjoy!

Sunday, February 6, 2011

Update...

Just a quick update. Things are good. Braydon continues to have one to two seizures a day WITHOUT meds!!! Outside of the 20-30 minutes a day we are dealing with seizures things are completely normal. The weather has kept us a home a bit more than we like to be but I guess it's a good change of pace. Deacon has been a little under the weather but just a simple cold. Jacoby is staying busy working and painting and singing. I've been doing the normal routine...school with Braydon, keeping up around the house, CBS and life group. Life is just good right now....simple and good.

Saturday, January 15, 2011

The best friends...

This week I went to our "Girls Night" that we plan as often as possible. Busy family schedules usually only allow for one about every 8 weeks or so. It is in these time that I am reminded I may possibly have the sweetest, most beautiful, best friends in the world. I love these girls for so many reasons...for the moms they are to their beautiful children, for the wives they are to their blessed husbands, for the friend they are to me and the friend they make me want to be to them. I love them for all the things we have been through together...births of our children, deaths of loved ones, hard times in marriage, financial struggles, at jobs, with post-partum depression. I love them for all the fun we have together, for the fact that we can be together 6 hours and not even realize what time it is or how long we have been out. I love the fact that we have celebrated years worth of birthdays together. I love that we can sing in front of each other and we all know we are as bad a singer as the person next to us! I love that each of them encourage me to be a better wife, mom, friend, sister, daughter and christian. I thank God for these women in my life! {Those of you who didn't make it last night and aren't in these pictures, please know that this message is for you too! Cori, Carrie, Amy V.}







"Snow" much fun...

Of course the snow is always a big deal in Texas. Even bigger for Deacon because it's the first snow he's ever played in! Last year he was too little to care much about the snow. We had lots of fun this year. Braydon rode his 4 wheeler in the snow, we pulled the kids through it in Deacon's wagon behind the golf cart (we went a little redneck with that I know-but hey...it was fun!) No snowman this year. The boys didn't care too much about that. They mostly wanted to be on wheels of some sort flying through it. Enjoy the pics:





Bombarded with birthdays...

As if December and January weren't hectic enough with the holidays...we have celebrated around 10 birthdays over the last two months as well. Braydon's, my brother in law Shane's, my sister Courtney's, mine, my sister, Caseys, my neice Montana's, my neice Jacy's and three friends! Whew! We didn't make it to all the partys but we tried. Here are a few of the ones we have made it to:

Matthew's Surprise 16th:
Matthew is a friend of ours from church. He definetly had a memorable 16th birthday. His parents did one of the best jobs I've ever seen on a surprise party. Matthew arrived blindfolded at out church with his dad, where about 60 of his friends and family members were waiting. He had to walk a rope across the length of our church parking lot, where he finally felt something dangling on the rope. He was then silly-stringed by everyone silently waiting for him. Once he pulled off the blindfold, he saw that what was dangling from the rope was a set of keys and right in front of him was his first car! Cake and pizza inside the church while a slideshow of pictures of him played. It was perfect!!!! Good job Michael and Sarah!
Walking the rope...

Gotcha!!!

The car!!!

He's very thankful and a little emotional...

Chad Kopal holding Deacon and baby Bethany!



Montana's 3rd:
Can you tell these three are cousins?

Cousins: Deacon, Montana, Braydon and Myani


Shane's 40th/Rock 'n Roll Playdate:
We celebrated my brother-in-laws b-day at their house before he left to go back to Pennsylvania to work. The kids had fun playing with the "paper jamz" guitars they got for Christmas!




Christmas catch-up...

I'm just now getting all my Christmas photos uploaded. It's a big job when there are 485 of them! Here are a few of the memories made this past Christmas with our family:

Christmas with my dad's family...the Massey's:
My baby cousin Chelby and her son Eli

Eli and me! He is so sweet!

Grandma with her kids

Grandma with her grandkids: Dusty, Chelby, me, Shane and my sister Cristie

Grandma with her great-grandkids

"The Littles"

Deacon sneaks cake when he thinks no one is looking!





Christmas with my mom's side of the family: The Tottens/Cassadys
Payton...

Where's Deacon???

Somebody LOVES Christmas candy!

Me and my mom with my nephew Bentley!! His first Christmas-he slept pretty much all the way through it! LOL.



Christmas with my father-figure-in-law's side of the family. These are our children's adoptive grandparents: The Vaughns/Godbolts
The girls: Kaia and Kadence


Kaia, Deacon, Kadence and Aiden

Papa Deacon with some of the grandkids