Full Update...

TRIP TO MD ANDERSON:

We got back about 11 pm last night with another great trip under our belt. Braydon and Deacon were both very good on the trip. They are both great travelers.
Braydon had an IV placed for two MRI's on Monday morning. He was put to sleep for them both. He was under anesthesia for a little over two hours. Needless to say he was pretty cranky when he woke up. The longer you are under anesthesia the worse you feel when you wake up (as a general rule). This was Braydon's 85th time to have been under sedation and/or general anesthesia. I know! Even the doctors find it hard to believe.

Monday night we went to visit some good friends of ours. The Thomas' are friends of ours from Houston whose oldest son Brendon was in treatment with Braydon over the last five years. Brendon and Braydon have always been good buddies. They are one year apart and have so much in common. Sarah and Sedrick also have a little boy named Langston that is 8 weeks older (and much bigger-lol) than Deacon. So everybody had a playmate. :-) We had pizza, let the kids play and just visited. We had a great time!

Tuesday Morning also brought lots of fun with Dr Suess birthday party at the hospital in the Pedi-Dome. There was a skit, birthday cake, crafts and lots of cool people there. The Retired NFL Association was there with several former NFL players. I got lots of good pictures that I will post soon. Braydon and Deacon got a Dr. Suess stuffed animal and a "Cat in the Hat" Hat, and Braydon also got a Dr. Suess book autographed by all the NFL players.

Tuesday around lunch with met with Braydon's Nuerologist. He let us know that Braydon's MRI's look P-R-E-F-E-C-T! Praise the Lord for that! There are NO signs of any injury, lesions, or tumors, which were all possibilities (to the doctors) of why his left pupil is larger than the right. There are MULTIPLE signs that the brain is perfectly healthy, growing and changing normally and the shunt was PROVEN to be funtioning beautifully!! PTL!!!

We are still unsure however why the left pupil is larger than the right pupil. His nuerologist assured us that when we meet with the Nuero-Opthamologist in April that she will be able to answer more questions on that. She will do a 4 hour exam that will give us lots of info. In talking with his Nuerologist about some of the things Braydon is doing and experiencing that concern us as of now...he did mention that is sounded like some thing called Petit-Mal Epileptic Seizures which can occur in children ages 4-14. The are momentary lapses in brain function that last only a few seconds and cause no problems other than interrupted learning. Since I homeschool him
we can handle this. But they are seizures none-the-less and would need to be treated with medicine. Again this is something we will test for in April and is not a diagnosis at this point-only a probable cause for some strange behaviors Braydon has been having lately.

Overall, this was a wonderful appt. with good news and just another blessing. We don't have many answers but we do have joyful hearts and faith in the Lord for all the answers to come. He continues to pour out blessings on our family (i.e. no problems with the brain)and we are grateful!

Thank you for all the prayers I know have been prayed over our family. Keep em up!