Update on Braydon...

We went to MD Anderson last week. Braydon had a follow up appt. with the Neurology team and an EEG. Physically he checked out fine. During the EEG, he had an active seizure, which is great because it gave us lots of information. It showed that the seizures lasted from 14 to 70 seconds. That's considerable for this type of seizures. His doctor also thinks that "maybe" his seizures aren't related to the scar tissue on the brain from brain surgery 5 years ago (which is what we originally thought) but actually may be hereditary (my grandmother and Jacoby's aunt, cousin and brother all had seizures). This DOES NOT decrease the chance of them going away as he gets older, but actually increases the chance. So that is good news. His seizures do seem to be getting longer and more frequent especially since we took him off his last two medications. We took him off the meds because the were not helping with the seizures (he was still having 4 to 5 a day) and because of yucky side effects (anger, confusion, withdrawel). We are now trying another medication (Depakote) with hopes and prayers going up that it works. We are also praying for no or minimal side effects. Please be praying with us. Updates as they happen!