Monday, April 12, 2010

Prayer Request/Update on Braydon

This week we head to MD Anderson for some additional testing to find out what is going on with Braydon's eyes. I haven't told many people but he has had the oddest "spells" in the last few months. The first one we ever saw him have was on January 1st of this year. Since then, they have become regular, more frequent, and more severe. It started with his eyes doing like a really hard double blink, like he was trying to refocus. As weeks went on he began to also have dizzy spells with this, now he is also experiencing disorientation and exhaustion with these spells. He is having them as many as 5 times a day and they last from 5 to 15 minutes. I have explained these "episodes" to 4 different doctors. None of them know exactly what is going on but we have been doing some different test trying to rule out the most severe possibilities while trying to find the exact problem. His neurologist at MDA suspected seizures over a month ago and that is one of the test that is being run this week is an EEG to check for seizure activity. This morning he was having such a severe episode that I grabbed the movie camera and just filmed it. I knew I needed a doctor to SEE what was happening. So we made a trip to see Dr. Conner today and he watched the video. He said based on what he saw if definitely looked like a seizure to him, but he wants us to still see Dr. Slopis at MDA this week and let him do some more testing and have the final say. This is just disheartening. To know that Braydon has been through so much and is still dealing with so many issues outside of cancer. We have faith in the Lord that all will be alright no matter what. But it is difficult not to get weary in these times. Please be praying for GREAT test results and a safe trip for us and most importantly HEALING....we don't even care about answers that much....we just want healing and for Braydon to be well.

4 comments:

  1. I KNOW YOU ALL HAVE BEEN THREW ALOT OVER THE YEARS, AND WE WILL COMTINUE TO PRAY FOR BRAYDON AND THE REST OF THE FAMILY. WE PRAY THAT YOU HAVE A SAFE TRIP TO AND FROM THE DOCTOR AND WE PRAY THAT ALL OF THE TEST COME BACK JUST FINE. JUST KEEP YOUR FAITH IN THE LORD (WHICH YOU ALREADY DO)!

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  2. Praying for you, sister. We will continue to take your sweet family before the Throne of our Father, the Ultimate Healer!

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  3. You all are in our prayers and will continue to be. Macie my 7 year old has been diagnosed with Epylipcie 6 months ago. She is on medicine and is doing good. God is good all the time.He will get you all through this just like he did before. Jessica Berry

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  4. Praying for you and your whole family. Let me know if there is anything we can do. - Nikki

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