The latest with Braydon...

I haven't given a medical update in a while and I know everyone is wondering what is going on....it's a lot of information but all very interesting. Braydon hasn't seen his neurologist at MD Anderson in two months. For the most part things have been pretty uneventful. He is still on the same medicatin (Depakote) and his seizures are less frequent than in the past but not gone. Right now we are in a time of seeking "alternative treatments" (i.e. non-precription drugs/treatment).

After more research and meeting with and talking to more doctors, we have come to the conclusion that the Ketogenic diet is probably not the best option for him. While his condition is serious (seizures for 11 months with unsuccesful treatment by at least three different anti-seizure medications-only 24% of all seizure patients don't respond to medication by the third one), his condition might not be serious enough for that diet in particular. The diet is so extreme, any doctor hates to see us try it because it is hard. And a three year committment. If he was having convulsive seizures and the medication side effects were severe in nature then they would have us go for it, but praise the Lord this is not the case!

We have also been to see a homeopathic doctor in Rowlett that we really like. We did some in depth blood and urine tests at that office that showed us (literally showed us on a screen-we got to see all of Braydon's cells and blood through a microscope and have it all explained to us). His cells are healthy and normal but he has a large amount of toxins in his body. That's not that surprising with what all medications and the amount of meds he has had. We have started Kelation pushes to help the body rid itself of toxins and also doing several supplements and diet changes to get the body as healthy as it can be. We are also testing for gluten sensitivity and doing a metals test. We don't have a lot of answers yet, but we feel like we are on the right track. We do know that since we have changed his diet and started the supplements we are seeing the least amount of seizures we have ever seen. We started th Depakote and saw a decrese (lowest was 3-4 a day) and since the supplements and diet changes we are now down to two a day!!! PTL!

An ingredient check on the Depakote revealed that the medicine is made with heavy metals and the same key component that makes anti-freeze. That is scary. Our goal is to continue to get the body healthy and the seizures gone so we can start weaning him off this dangerous poisonous medicine he is having to take. It's not time yet. But that is the goal! Keep us in your prayers...especially Braydon's body and health.